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Dina at the Mailbox Store in Yorktown

DIY – Get Creative 2022

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I wanted to introduce myself a little bit...

My name is Dina Simonetti, I am 31 years old, I am the owner of the Mailbox Store of Westchester in Yorktown Heights, New York, and I run this store solely by myself as I have started this business during the middle of the pandemic.  I graduated Lakeland High School in 2008, so I am a local to the area.  At times, you've probably seen I have been late at times more often than some for good reasons and most of the time it's been out of my control or maybe you've never experienced this. 

I will give you a little secret and that is:

I have relapse-remitting multiple sclerosis. 

A lot of people do not know what this disease is and it is very difficult to understand or most people always envision someone as a paraplegic or in a wheel chair or with a cane or a walker, these are actually true in the later stages of M.S. and is very much dependent on the progression of the individuals cases.

This means I fight MS Fatigue and weakness daily and at times I will flare up where my right side will feel pins and needles, numbness and muscle weakness when I can't lift things with slight weakness to possibly unable for my muscles to receive communication from my brain to move. 

At one point, there was a period of time my left arm lost all mobility and functioning that I couldn't even open up a door knob and had a shuffled gait, then after a round of a week or two of steroid treatment, I pushed into remission for 3 years until recently I am in the middle of flare at the moment.

This is actually not for me, this is in hopes and support for everyone who lives with this disease in hope to find better ways to fight for a cure or for a better way of living.

Our goal—a world free of MS. 

I’ve planned a Do It Yourself Fundraising (DIY) event to help improve the lives of people affected by multiple sclerosis. I would love your support as I bring my fundraising vision to life as I myself have Relapse Remitting Multiple Sclerosis.

Please support me today. 

Nearly one million people live with multiple sclerosis in the US such as myself. Over the past 75 years, the National MS Society has been the driving force for progress and paved the way for nearly all the treatment options available today—but, they’re not finished yet. The Society is determined to be a lifelong partner and resource for every person affected by MS—those diagnosed with the disease and their loved ones—and to ultimately find a cure.

The money I raise through my DIY fundraiser will help fund MS research, programs and services so that people affected by MS can live their best lives.

Please help me create a world free of MS.

 

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